My right calf had continued to swell and throb over the last several days, to the point where I…, In 2016, life was normal. But by 4:00 in the morning, the pain woke me up. This field is for validation purposes and should be left unchanged. For many patients recovery will take a number of months. In the photo above I’m at the emergency room at my local hospital waiting for the CT scan mentioned below. I am 28 years old and fairly active. For example, it may cause a sudden collapse. I saw a hematologist after being released from the hospital and he told me I tested positive for the inherited clotting disorder called Factor V Leiden (FVL). Symptoms of a PE may include shortness of breath, chest pain particularly upon breathing in, and coughing up blood. Pulmonary embolism (PE) is a serious lung condition wherein one of the main arteries to the lung gets blocked by any mass of material, such as an air bubble, a large speck of fat, and/or part of a tumor or blood clot coming from elsewhere in the body, most commonly, a blood … CDC twenty four seven. I was one of the lucky survivors, and was overjoyed to find out six months after mine that I was pregnant. PO Box 825687 I’m working on getting my endurance back; however, I am finding out that it’s a slow, long recovery process. 22 percent of patients were found to have a pulmonary embolism. In other words, it was considered a ‘terminal event.’ 1. How do doctors confirm a pulmonary embolism? Up to 30 percent of people with pulmonary embolism will die within a month of diagnosis. Currently, I am still on blood thinning medication and back at work part-time, although fatigue is still a factor in my recovery. If the patient finally has an answer to mysterious symptoms the diagnosis may be a relief. Ted E. Ted E. is an avid Penn State fan. A PE can become life-threatening. Here's what you need to know about the condition. That statistic just hit me like a ton of bricks. Most patients with DVT or PE recover completely within several weeks to months without significant complications or long-term adverse effects. Late at night on Feb. 11, 2015, an ambulance raced up I-95 toward Yale New Haven Hospital. Recovery can be very variable and may take a long time, but for inspiration, look to Serena Williams! Currently, I am still on blood thinning medication and back at work part-time, although fatigue is still a factor in my recovery. If you have been sick at all remember to add that sick time back in because it sets you back and you have to gain that time back. But attending a basketball game almost ended his life. What are the symptoms? I now know that a pulmonary embolism is a very serious condition that takes up to about 100,000 lives each year in the US, and needs immediate medical intervention. Salem is a small town with many people raising cattle. Will I ever be able to again?” and “Will I ever get back to normal?” are just two of the questions Paul’s been asked by people who’ve had a pulmonary embolism. Toll Free: 877.4.NO CLOT, National Blood Clot Alliance CDC is not responsible for Section 508 compliance (accessibility) on other federal or private website. My experience started with coughing up blood, only in the mornings, for a few days. Within minutes I was receiving my first blood thinner injection. When 45-year-old Reginald T. went to bed on a Monday night, he had no reason to believe the mild chest pain he was feeling was anything more than heartburn. I was released from the hospital after three days and spent the next three months unable to work while recovering. A few patients will be lucky enough to have a short recovery of a few days. During a visit with his primary care doctor of nearly 20 years, Rick Fedell mentioned he’d been feeling fatigued and short of breath lately. The Challenge: Multiple Blood Clots. If it’s not your first PE, you may even feel angry or frustrated that blood clots are still a problem for you. The short, uncomplicated answer is recovery is different for everyone. Every patient has a story and NATF would like to invite you to share yours. “I got about halfway across and slipped. Worried, I went to the doctor, who, without fully examining me,…, I was the most fit I had ever been when I had my deep vein thrombosis (DVT) and pulmonary emboli (PE) at 28 years old. The Ride of My Life: Kim’s Story of Deep Vein Thrombosis and Pulmonary Embolism. However, around 32 weeks into my pregnancy, things started to take a turn for the worse when I developed pain in my left hip. But when he awoke the next morning, it was still there. How long will I feel breathless? A walk which usually takes five minutes took about 20. I was also fatigued from walking…, It was 6:00 p.m. on a cold Wednesday night in February 2014. Even on the pain medicine, I was in constant pain until almost November, which was when I was able to lay down again. However, long-term problems can occur, with symptoms ranging from very mild to more severe. I’m Sarah Cook and I was diagnosed with multiple bilateral pulmonary emboli on October 4, 2011. At…, My story begins in February of this year when I felt a sharp, intense pain in my ribs. Marie Bussey Updated January, 2013 According to the American Heart Association, up to two million Americans are affected annually by deep vein thrombosis 1.Of those who develop pulmonary embolism, up to 300,000 will die each year 2,3.That is, more Americans die annually from DVT/PE than from … But a large pulmonary embolism is serious, and can cause heart problems, lung problems or even sudden death. Pulmonary Embolism Recovery - What to Expect. I am a healthcare worker, mother, and recent survivor of venous thromboembolism (blood clots in the veins). This had made my breathing laboured and this also came with a diagnosis of atrial fibrillation, high blood pressure and an irregular heartbeat. My…, I was diagnosed with the genetic clotting disorder factor V Leiden, or FVL, when I was 15 years old. Linking to a non-federal website does not constitute an endorsement by CDC or any of its employees of the sponsors or the information and products presented on the website. I forgot to mention extreme fatigue and lack of energy is another major symptom of PE recovery. Now, going to work and moving around is enough to tire me out. A massive PE can cause collapse and death. Join the Public Health Webinar Series on Blood Disorders, Centers for Disease Control and Prevention. My legs felt heavy. I started to increasingly coughing up blood throughout the day. Tere Long Doris Coletta Rick Fedell. But if these symptoms last for more than 8 weeks, talk to a health care professional. Go to follow-up appointments and take blood thinners as directed. Patient Stories Pulmonary Embolism During Pregnancy: A Mom's Difficult Decision. Trust me, because I’m a two-time survivor of pulmonary embolisms, also known as PEs or blood clots in…, My Name is Frank. With timely treatment, most people can recover. Deep Vein Thrombosis (DVT) & Pulmonary Embolism (PE) Blood Clots Patient Stories. I am sharing my story to raise awareness, both on a general level as well as from the perspective of a healthcare worker. Most people are treated for pulmonary embolism for at least 3 months, and some may be treated for the rest of their lives. I had heard the term “pulmonary embolism” before but did not know what it was. Pulmonary Embolism recovery looks like this. DISCHARGE INSTRUCTIONS: Call your local emergency number (911 in the US) if: You feel … Monday night I hardly slept and I started a low-grade fever. Now, going to work and moving around is enough to tire me out. I’m working on getting my endurance back; however, I am finding out that it’s a slow, long recovery … Philadelphia, PA 19182-5687. Pulmonary embolism can be life-threatening. A pulmonary embolism (PE) is a blood clot that gets into blood vessels in the lungs and prevents normal flow of blood in that area. Throughout history, pulmonary embolism (PE) has almost always been diagnosed on the autopsy table. Keep that in mind. While growing up, FVL never…, My name is Tim. Managing Anticoagulants Before, During, and After Medical Procedures, Helping Women Make Choices About Contraception Following DVT Blood Clots. At 22 years old, I wasn’t, and neither are you! You will be subject to the destination website's privacy policy when you follow the link. I walked home with my 5-year-old son very slowly. Symptoms of a blood clot in the leg may also be present, such as a red, warm, swollen, and painful leg. Rick Fedell: Recovery From Potentially Fatal Blood Clots. A 29-year-old mom recently died of a pulmonary embolism—a day after giving birth and with no symptoms. “On the way into the arena, I took a shortcut across a section with icy patches,” he says. Around half of patients with DVT will have some degree of chronic discomfort, and ≈15% will … Making A Full Recovery: Aimee’s Story I was the most fit I had ever been when I had my deep vein thrombosis (DVT) and pulmonary emboli (PE) at 28 years old. What can I do to reduce the chances of me having a pulmonary embolism? Most individuals that I have talked to about recovery from a pulmonary embolism want to know, how long they can expect to be healing. Then my lungs started hurting and quickly progressed to where I could not lay down. My Dad always had a few heads of cattle and, growing up, I would get on calves trying to ride them. Pulmonary embolism (PE) is a blockage of an artery in the lungs by a substance that has moved from elsewhere in the body through the bloodstream (). I go to Crossfit five times a week. I spent the night sitting up on the couch sleeping vertically when I could. Revolutionary Device Clears Pulmonary Embolism An advanced clot-busting device saved Reginald from life-threatening blood clots. I returned to my doctor’s office first thing in the morning and she sent me straight to the ER. Now during my hospital stay I had a pulmonary embolism on one of my lungs and was taking daily Clexaine injections to break the clot up. After my … Pulmonary Embolism Left atrium Left ventricle Right ventricle Right atrium. I had no shortness of breath. Amy and I were together since 2001, and we were married in 2004. I was balancing a full-time desk job, motherhood, and the excitement of a second pregnancy. The experience depends essentially on how prolonged the affected individual had the clots of blood prior to they were identified and cared for and how harsh the pulmonary embolism (PE) was. I thought I was finally feeling a little better until I threw up at 4 am and realized I was throwing up blood. I have heard “you are too young” at every medical provider’s office, but blood clots do not discriminate. A pulmonary embolism (PE) can cause symptoms such as chest pain or breathlessness. Most…, My name is Michele. Saving Lives, Protecting People, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Healthcare Professionals: Training and Education, Signs and Symptoms of Blood Clots with Cancer, Blood Clot Risk Checklist for Cancer Patients, Healthcare-Associated Venous Thromboembolism, U.S. Department of Health & Human Services. Pulmonary embolism. Pulmonary embolism recovery experiences vary greatly from patient to patient. I had been doing Zumba exercise three times a week before this happened. About a 1 in 3 people who have a pulmonary embolism have another one later. With treatment, the body has a cha… The mask was precautionary in case I had tuberculosis or some other communicable disease. Shortly after the CT scan was completed that afternoon a doctor came in and told me I had multiple blood clots in both of my lungs and that I was being admitted to the hospital. What’s the treatment? They believe that FVL, combined with being on birth control, is what caused the pulmonary emboli. It was her healthy, active lifestyle and her proximity to the University of Maryland Medical Center (UMMC), however, that ultimately ended up saving her life. October 11, 2017. I quickly found out, though, on July 1st, 2020, when one tragically claimed the life of my wife Amy. I ran marathons, competed in triathlons, and had just recently completed my first 100-mile bike race. If the patient enters under extreme duress, it can be a very scary start to recovery. In January of 2020, I underwent an elective ankle surgery. Panel Discussion: Blood Clots & Women’s Health, Stop the Clot, Spread the Word™ Hospitalization, Toolkit for Knee and Hip Replacement Patients, Atrial Fibrillation (AFib) and Clot-Provoked Stroke, NBCA Atrial Fibrillation Awareness Survey, NBCA Sports & Wellness Institute: Team Stop the Clot®, ‘For Every Day in May’ Wall of Dedications, Medical & Scientific Advisory Board (MASAB), Even in a Pandemic, Take Care of Yourself: Sam’s Story, Birth Control and Factor V Leiden: Jenna’s Story, Seeking A Second Opinion Saved My Life: Kathleen’s Story, My Lifelong Experience with FVL: Gemma’s Story, Two Blood Clots, Twenty Years Apart: Tim’s Story, Blood Clots Do Not Discriminate: Heather’s Story, Be Aware and Care: Amy’s Story, as Told by her Husband Frank, The Spark for Advocacy: Michele’s Story. I will turn 30 in April, 2012, and before this incident was a very active person. Depending on how big a clot and number of vessels involved, it can be a life-threatening event. view all stories. Recovery for other people might be time off their feet due to a broken or fractured running bone, but even they always came back within a matter of months. We have five beautiful children together. Pulmonary embolism affects around 1 in 1,000 people in the U.S. every year. A pulmonary embolism (PE) is the sudden blockage of a blood vessel in the lungs by an embolus. I saw my doctor on a Monday and she ran some tests and ordered a CT scan to determine whether there was a blood clot. With the help of a team of Yale Medicine experts, a near-death experience results in new life for a young family. After my bike race, I was struggling to recover. Is it true that birth control pills cause blood clots? I was not sure what exactly this all meant. Wow. But we hope that providing some answers to … Patients with a BMI (body mass index) of 30 or higher are nearly three times more at risk for developing a pulmonary embolism. Kristen, an avid runner, was unknowingly living with a pulmonary embolism – a dangerous blood clot in her lungs. Assuming it was a pulled muscle from a workout the day before, I didn’t think anything of it. Patient Stories. I grew older and started getting on young bulls until…, Can you be too young to experience blood clots? A pulmonary embolism (embolus) is a serious, potentially life-threatening condition. If you would like to contribute a Patient Perspective contact us at info@natfonline.org. The day before, Victoria Roa, 38 weeks pregnant, had felt dizzy when she went to lift … Writing down an experience and sharing it with others can be therapeutic, as can reading about how other patients have handled their challenges. Until recently, I had no idea what a pulmonary embolism (PE) was. What is a pulmonary embolism and what’s it caused by? Today, PE is seen as a modern-day medical dichotomy: we understand its minutia and yet, somehow, still fail to diagnose or tackle it appropriately. The experience depends largely on how long the patient had the blood clots before they were diagnosed and treated and how severe the pulmonary embolism or embolisms were. If you have more questions, don't hesitate to call the specialist nurses on our helpline. Pulmonary embolism (PE) recovery period or healing time differs deeply from individual to individual. Because of the blood clot, the function of the heart can stop suddenly which can cause the sudden cardiac arrest or death. July 2, 2016 by Angela Leave a Comment “I used to go running. The Centers for Disease Control and Prevention (CDC) cannot attest to the accuracy of a non-federal website. But, on May 1, 2020, as I was walking to my car, I was overcome by dizziness and lightheadedness as I have never experienced before. Patient Stories. I had been doing Zumba exercise three times a week before this happened. The survival rate of a pulmonary embolism increases with early detection and proper treatment which is actually based on … So, recovery was not a very deep word in my vocabulary and I soon found out, that I really had no idea what recovery from a pulmonary embolism … I called the non-emergency services here in the…, Phone: 703.935.8845 For many affected individuals recovery/ healing will take a couple of years.